Meet my superhero Chase :)
Now your probably wondering why I call him superhero Chase or sometimes superhero Chasers.. Well it's because Chase isn't no ordinary lil boy and he's been through a lot in his life and still is continuing going though things now! See when Chase was about a year old we found out that our lil guy had a tumor wrapped about his spine cord and that was the reason why he couldn't lift his left arm up. By the time we found out it was already too late to do anything sadly. When he was 3 years old he had his first biopsy and there was so speculation on what Chase had and doctors saying this and that, it felt like a never ending battle. Although one thing kept getting throw out there was neurofibromatosis (NF) and after genetic testing and a wasted trip to Minnesota it was clear that's not what chase had. Well then all of a sudden his tumor he always had began to grow something else off of it that didn't appear to look like what he always had :(
So then it was back off to another surgery to biopsy :( That's when we found out Chase had a rare cancerous tumor on top of other tumor diagnosis. Basically Chase's case is so rare that nowhere in the record books is there a case like his and it's his own disease. I think that's when my heart sank into my chest and I thought "oh my god, why"?
Soon after that we learned that this tumor had grown more to the point it was going towards his heart and we would have to go through an aggressive surgery or else he would die a horrible, painful, slow death :,( to hear those words and to write them now it just breaks my heart and I don't know how I got though it all!
That surgery took 15 hours and he made it through the surgery just fine, but sadly they did in fact have to cut his nerves to his left arm to resect the tumor. Which meant although Chase has left arm he can no longer use it at all! We did run into a complication the next day after surgery that weren't expected he had fluid built up and had to have a chest tube and be admitted to the ICU he was also throwing up blood :,( we didn't know what was going on and I don't know how I didn't break down there! But he pulled though that and soon bounced back and after awhile stay at the hospital we got to finally come home Cancer free!
He had to wear a neck brace for awhile and had to be really careful but after that he was doing great and then a month later we were back in the hospital :( because Chase got mono then after a couple of days in the hospital on IV antibiotics he was ready to be a happy kid again!
We were doing scans every 6 months after his big surgery and everything was looking good then we got hit with what we knew was bound to happen again :( a small growth had started again was about a dime size but any growth in my book is bad. Now Chase had to get scans every 3 months and then something changed he started saying his arm he could no longer move at all because they had to cut off the nerves to get out the tumor was hurting. Well they classified it as nerve pain and put him on
So then it was back off to another surgery to biopsy :( That's when we found out Chase had a rare cancerous tumor on top of other tumor diagnosis. Basically Chase's case is so rare that nowhere in the record books is there a case like his and it's his own disease. I think that's when my heart sank into my chest and I thought "oh my god, why"?
Soon after that we learned that this tumor had grown more to the point it was going towards his heart and we would have to go through an aggressive surgery or else he would die a horrible, painful, slow death :,( to hear those words and to write them now it just breaks my heart and I don't know how I got though it all!
That surgery took 15 hours and he made it through the surgery just fine, but sadly they did in fact have to cut his nerves to his left arm to resect the tumor. Which meant although Chase has left arm he can no longer use it at all! We did run into a complication the next day after surgery that weren't expected he had fluid built up and had to have a chest tube and be admitted to the ICU he was also throwing up blood :,( we didn't know what was going on and I don't know how I didn't break down there! But he pulled though that and soon bounced back and after awhile stay at the hospital we got to finally come home Cancer free!
He had to wear a neck brace for awhile and had to be really careful but after that he was doing great and then a month later we were back in the hospital :( because Chase got mono then after a couple of days in the hospital on IV antibiotics he was ready to be a happy kid again!
We were doing scans every 6 months after his big surgery and everything was looking good then we got hit with what we knew was bound to happen again :( a small growth had started again was about a dime size but any growth in my book is bad. Now Chase had to get scans every 3 months and then something changed he started saying his arm he could no longer move at all because they had to cut off the nerves to get out the tumor was hurting. Well they classified it as nerve pain and put him on
nerve medication. Then he began screaming in pain about his neck hurting and he would wake up 2 to 3 times a night. After calling every doctor I finally got his pediatrician to give him something til we did another scan, she ended up giving him Tylenol with codeine just to help him get some relief and sleep as well.
We just recently had another MRI scan that showed that it had grown more from a dime size to about a half a dollar size and it is pushing against his spine. We now have an appointment setup this coming May 12th 2016, that's when we find out what's next in Chases journey. I know his fight isn't over and there's more in store for this amazing superhero, who's life dream is to be a fireman when he grows up.
Come follow us on this journey by visiting Prayers For Chase 2010
We just recently had another MRI scan that showed that it had grown more from a dime size to about a half a dollar size and it is pushing against his spine. We now have an appointment setup this coming May 12th 2016, that's when we find out what's next in Chases journey. I know his fight isn't over and there's more in store for this amazing superhero, who's life dream is to be a fireman when he grows up.
Come follow us on this journey by visiting Prayers For Chase 2010
